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Saturday, September 28, 2024

Cancelled Conference & the Terrible, Horrible, No Good, Very Bad Hurricane Helene

I have been a Floridian my entire life, so hurricanes are nothing new to me, but twenty years ago, I lived through The Four in '04, which drastically changed how I feel about hurricanes (I hate them now). Back then, Charley came in early August and did a lot of damage in South Florida. Then we got Frances on September 5th that did a number on the whole state, really, and the first one that did some damage to our area of North Central Florida. Ivan was next, making landfall two weeks later in the FL the peninsula. And exactly three weeks after Frances, Jeanne made landfall on September 25th. 

The Four in '04 will never be forgotten
Those Yellow and Cyan tracks messed me all up
Frances did a lot of damage to my city, but it was Jeanne that took it to a whole new level of suck - the ground was so wet because all the prior storms, many of our gorgeous Oak trees just couldn't stand up against the winds that Jeanne brought with her, and they just toppled over, pulling their roots right out of the ground. An old story from the local paper said that they estimated almost half a million cubic yards of tree trunks and debris was collected after the storms. 

I will never forget the sound of hearing a tree (that straddled both mine and my neighbor's backyard) ripping out of the ground and falling over... It was so loud and foreign to us that we thought a tornado was coming, and we clambered into the hallway with couch cushions over our head, awaiting the impending devastation. Instead we heard this massive thud at the same time the power went out. We stayed there for a few minutes until we felt it was safe (no noises, no train sounds) then climbed out and turned on flashlights. We didn't see anything out the front windows, and when I looked out the bedroom window to the backyard... all I saw was tree bark. No sky. No stars. No ground. Just tree bark. The next morning, when we could inspect the backyard during the daylight, we could see that this tree, probably bigger around than a minivan, fell from my neighbor's yard, across our backyard, with the canopy resting in my other neighbor's yard, tangled in power lines, missing everyone's homes by less than a foot. 

Because of the tree canopy entwined with the power lines, our entire neighborhood was without power for almost a week. Florida in September is no joke with no AC! We slept in the living room with the windows open at night to keep cool, went to local restaurants and bookstores to keep cool in the day. We lost thousands of dollars worth of food in our fridge and freezers. And we learned a lot about Storm Preparedness. 

Photo courtesy of The Gainesville Sun archives
(Photo to show devastation - this isn't my yard)
Anyway, the point of this little flashback is to say that I. Hate. Hurricanes. My PTSD is off the charts anytime one is coming our way. And lawd, Helene was a big one. 

For the past few weeks, I'd been looking forward to attending a work conference in Orlando. My employer had paid for three nights' stay at the conference hotel. Hubby was gonna come along for a 'mini-vacation' - kind of a get away from all this bullshit we've been dealing with thing. 

I had taken off September 25th since Hubby had a few doctor's appointments, so I wasn't checking my work email that day. I'd been watching the weather to see what Helene was going to do, but it wasn't on my radar yet as something to worry about. Blissfully unaware of a message in my inbox, stating that the conference had been cancelled. Made sense, of course, since it was a conference of Florida-specific attendees who would be more useful to their communities during a storm than attending a conference. But still... wah! You guys ruined my vacation! I can hear Weird Al's song Why Does This Always Happen to Me? playing in my head right now...

 
Before we left for his follow up with Dr. L, I got a text from work that said we'd be closed starting at noon on Wednesday, through the end of the day on Thursday. Okay. That's great, but that's not good... That means shit may be hitting the fan soon. 

We went to his doctor's appointments, as planned, then came home and did storm prep, including:
  • Charging all the things (laptops, phones, tablets, battery backups, etc)
  • Filling multiple large containers with water and freezing (will keep freezers colder longer, if the power goes out)
  • Putting all the batteries and flashlights in a centrally convenient place (the living room table)
  • Washing the dishes (just in case the water goes out or a lift station goes offline after the storm)
And once all that was done, all I could do was be perpetually online. Wednesday night was okay; I tried to get as much sleep as possible because I knew that Thursday night was gonna suck. 

On Thursday, my boss called me to check in on me, to let me know that the office would also be closed on Friday, and to tell me that the conference was cancelled. Again, I'm not mad that it was cancelled, I'm just bummed at the loss of a mini-vacation, basically on my employer's dime. I shared that info with Hubby and he agreed that it was a bummer, especially because he'd already put in, and been approved for, the time off! We kicked around the idea of going... somewhere... but never really solidified anything, and my mind wasn't in vacation mode at that point. 

Dinner was okay - I could see the bushes moving a little more than they normally moved. Rain was harder. I spent all of dinner on my tablet reading X, trying to keep my mind off the incoming storm, but also staying up to date on what others are experiencing. Somehow that was really helpful. I took the tablet to bed a few hours later, turned on The Amazing Race (Season 1) and binge-watched with Hubby, to keep me distracted from the sounds happening outside. Wind was howling. Trees were creaking. Things were hitting the roof with hollow bonks. Every time the winds kicked up, I took a deep breath to calm down and prayed for it to be over. The cat - who is always aloof and very independent - came and curled up on our headboard, so we knew it had to be pretty bad! For hours, all I did was refresh X, play FreeCell solitaire, and cheer on the teams of the Amazing Race. 

Thankfully, we never heard anything big topple over. We never lost power. We were safe and warm inside our comfy bed, and after the worst of it passed, around 2am, I felt like it was safe for me to fall asleep. Bless his heart, Hubby stayed up with me the entire night because he knew how much I hate storms! Both of us conked out in minutes, and slept in probably until 10am that morning!

When we got up Friday morning, we did a quick damage check outside, and everything looked good. We kept power all night, but at some point after 2am, we lost internet service (and it stayed out until Sunday night, because the provider had lost power at their facility). There were a handful of big-ish branches in the yard, lots of leaves and Spanish moss on the ground. A few big branches and large twigs on the roof. But our Old Girl survived to fight another fight... God bless concrete block houses built in the 1950s! 

No internet meant that we didn't know much of what was going on in the world. I assumed that Helene just blew herself out by the time she got to the state line and all was well, so imagine my sadness and horror when I finally used some of my cell phone data and saw the devastation happening in western NC and eastern TN... All I could think was that this was going to be terrible for them, because they don't know how to prepare for storms like we do... they don't hit by hurricanes, so they don't stockpile, or keep extra food and batteries! I assumed there'd be pockets in the community that lost power, or needed to come together to feed neighbors, but the next time I used data to pull up X, I was horrified. Streets were gone. Entire cities were gone. People were gone. How in the world is Tennessee and North Carolina going to fix this? And where was the National Guard, or FEMA, or even the local cops? From what I could see for the few hours I was online, there was no one with any sort of official capacity helping these people. 

My heart hurts for the people of Eastern Tennessee and Western North Carolina. If you feel that you can, please donate to Meredith O'Rourke's (Trump) GoFundMe for these hurricane victims, donate to Samaritan's Purse, or to any local church or charity in the area. 
 

Saturday, August 31, 2024

The Saga of the Mysterious Abdominal Pain Never Ends (Part 4 - August 2024)

If you've missed any parts of this saga, you can catch up with the links below:
Part 1 (April & May)
Part 2 (June)

We're still in a holding pattern, of sorts, and it's really starting to get to me, guys. Every day, I wake up thinking Today is going to be a good day... we're going to do everything we're supposed to do, we're gonna stay on our schedule, and nothing is going to be weird or abnormal. And then something happens and the schedule goes out the window. I'm a creature of habit. I like knowing that on Monday, I'm going to take him to work, go to the gym, come home and shower, work from home, pick him up, make dinner, go to bed. But if he doesn't go to work, we sleep in, so I don't go to the gym, so I don't get my shower, and then I shower before I go to bed. Part of it is me, I know that... I know that I can still get out of bed and go to the gym, but I have no willpower; the minute that something different happens, I use it as an excuse to not do things. I hate this about me, and I complain about it a lot, but I never get around to actually fixing this problem.... 

Sigh...

So, on August 1st he expected to wake up and go to work, but when he stood up out of bed, he said that he felt extremely dizzy and lightheaded. This carried over for the next few days as well. He was feeling better and went back to work on August 8th and did a full week with no issues. 

He had another round of labs on August 12th, and we were ready for his MRE on August 14th, but it got cancelled because Blue Cross Blue Shield hadn't approved it yet. We also had a follow up with Dr. L who said that he was stable and that he should keep on tracking his blood pressure and watch what he eats. 

On August 15th, he had his Peeper View (Cystoscopy) and a prostate exam. Bless his heart, the Urologist wasn't all that... gentle... with the exam! I left the room and hung out in the hallway, and within seconds I heard a weird combo of "oof!" and "oh!" and then the doc was out of the room and I went back in, trying not to giggle. Hubby had never experienced a digital exam before, so he was grossed out with the lube and the finger and the whole thing and me - a vagina haver - was like, what's the big deal?


Anyway, the nurse came back and to clean and prep his peeper, then the doctor squeezed some numbing gel into hubby's urethra. At the same time, the nurse uncovered the Cystoscope, and my god... Hubby's eyes about popped out of his head! He said later that it looked like an immersion blender. 

This looks like a creepy mechanical iguana, lol
The cystoscope has a little light and camera at the end, and it's connected to a TV so that the doctor can see what's happening, and I got to see the entire thing. I won't lie, it was cool as hell! Hubs wasn't as impressed, and he was uncomfortable, and let out a few sharp oofs at one point. We saw a (benign) polyp in his urethra, and the entire bladder. They used the cystoscope to inflate the bladder with water to stretch it and make reviewing the tissue easier. I didn't time it, but I'd say that the entire process from numbing to retraction was maybe 5 minutes? Once done, they left him to clean up and empty his bladder in the bathroom nearby. 

As expected (and I'm so frustrated by all of this), he didn't see anything. Maybe a redness that could be a result of a past infection or problem. He wrote an order for a FISH Test (Fluorescence in situ Hybridization) which is a test that can detect genetic abnormalities associated with cancer. FISH testing may be more reliable for looking for abnormal cells, and may detect bladder cancer up to 6 months earlier than other methods. Interestingly, on the lab order, they have Hubby diagnoses as Chronic Kidney Disease Level 2 - not even Dr. L has given us any official diagnosis. 

As he feared, but fully expected, he woke up the next day with LLQ pain again. Most likely all of the ab-clenching and tensing up during the Peeper View triggered another bout of pain and he missed an entire week of work. 

On August 22, he felt ready to go back to work, but he was waylaid by gastrointestinal issues (like three poop stops in an hour type of issue) that stuck around for multiple days. He stayed home again, and because he had to fill out some official paperwork with Home Office that took absolutely forever (!), he didn't go back to work until after Labor Day! 

On August 27, we had a full schedule. First up was an MRE (Magnetic Resonance Enterography), a special type of MRI that uses contrast material to produce detailed images of the small intestine. It's often used to evaluate for things like Crohn's Disease. When we got to the medical plaza, we were called back and he was given four containers of VoLumen (20oz each, I think) that he was supposed to drink within an hour! While I was paying attention to the nurse and what he was saying, I could see Hubby next to me mentally withdrawing and already shutting down inside of his head... I can't drink that, there's no way, I quit, let's go home... those kinds of thoughts. I asked the nurse what would happen if he didn't drink enough, and was told, point-blank, that the MRE would be cancelled, we'd need to reschedule, and he'd have to drink again. So, I made Hubby put on his Big Boy Pants and drink. 

It tasted like flat room-temperature Sprite, which was weird. He got through the first bottle in 20 minutes, and most of the second bottle in the next 30 minutes. (If you can math, that means he's way behind schedule, and things aren't looking all that good). The nurse called us back again so that he could change in to scrubs. He said that Hubby needed to at least drink three bottles or it was a no-go. So Hubby continued to chug while he changed. The nurse also asked if I wanted to be in the room with him while he had the MRE (I didn't think that was an option), so I needed to put on scrubs too. Both of us had to be 100% naked under the gowns (plus those fun grippy socks), with no jewelry, hair clips, glasses, etc. The rest of our stuff got shoved into a locking drawer and the nurse held on to the key. By the time he got to the MRE machine, he was full of 2 3/4 bottles of VoLumen (much less than he should be, but he got the go-ahead from the nurse, so...)

Inside the MRI suite, he went in feet first with his hands above his head sticking out of the machine. They gave him a button to push in case he needed to tap out, and both of us got earplugs because the machine is very loud (especially inside the machine). Some machines allows for music inside, but this one didn't have that feature, so he was just in a Pringles can with his own thoughts. I was able to stand next to the machine and hold his hands, and at first, I was just giving him some gentle "I'm here for you" squeezes. For many of the scans, he was required to hold his breath for anywhere from 8-19 seconds, so we worked out a system that I'd squeeze at the halfway mark (4-9 seconds) and double-squeeze when it was over. This seemed to calm him down well, and after about a half-hour, he was done with all the scans. We changed back into our real clothes and headed home. He was still full of VoLumen, so he didn't really want lunch. 

After lunch, we had our last follow-up with Dr. K (the virtual doc); she felt like Hubby was in good hands with Dr. L and ARNP LeBlanc, and asked that we just check in with her every once in a while to let her know how he's doing, especially if (when) we get a true diagnosis and a reason for the diagnosis. But until then, we were done with her; no follow-up appointments in the future. 

We had a few hours to relax but then we had to go out again, this time for his Wellness visit with ARNP LeBlanc. This was more of a routine doctor's visit, not specifically for his pain or kidneys. She suggested that Hubby have his lipids checked for high cholesterol, but other than that, she was fine with what Dr. L was doing, and sent us home with no additional info or follow-up appointments. 

So at this point, he's still on leave, but that's because Home Office sucks, not because he's not feeling well. Here's hoping that he can get back to work soon and we can put all this pain and poop and dizziness behind us and get back to real life. 

Wednesday, July 31, 2024

The Saga of the Mysterious Abdominal Pain Remains Unclear (Part 3 - July 2024)

If you've missed any parts of this saga, you can catch up with the links below:
Part 1 (April & May)
Part 2 (June)

So, an upside of Hubby's continued (unofficial) leave from work was that I was able to run the Celebration Run 5k in Jacksonville on Independence Day. It was hot, as always, but nice to just get away for a day and not have to worry about doctors and appointments and labs and pee and meds and, and, and.... I carried a medium flag this time (not the big boy on the flagpole), and it was better. I finished at almost exactly one hour (1:00:19), and I'm fine with that. This was cathartic, not athletic. Afterward, I hit up Dollar Tree and Walmart for a few things, had delicious cheese curds and custard at Culver's for lunch, then headed home. 

I love a big medal
That Friday, he did another round of bloodwork and 24-hour urine collection, prompting Dr. L to change his blood pressure meds. 

He was set to go back to work on July 8th but another round of insomnia showed up and pushed his return back to June 11th, and it was good for a whopping two days. More pain showed up and he skipped work on Saturday - Monday. It sure made going to Bridge of Lions in St. Augustine much easier, though! I finished with a better time of 58:00, went up to IKEA then had lunch at Cheddar's, detoured back to Buc-ee's before going home. 

St Augustine always puts on beautiful sunrises
Thank you to the random youngster who chalked this... I needed it!
We got his colonoscopy results - one of the polyps that had been removed was a Tubular Adenoma. That kind of adenoma could develop into cancer, but they got it before it did, so all is fine, and they want him to come back in 2027. 

On July 25th, he met with his new Primary Care doc, ARNP LeBlanc. She listened to everything he said, and then had her attending (Dr. M) come in, as ARNP LeBlanc was stumped. Dr. M was the first doctor out of all of the people we'd seen to suggest that his LLQ pain may be something like scar tissue or internal adhesion. And unfortunately, the treatment is to go back in and try to fix what might be wrong, or learn to live with it. But it's not really something that can be seen on X-Rays or CT Scans. They also recommended a Gastroenterology consult, and an MRE of the abdomen and pelvis (similar to an MRI). Unfortunately (but as expected) their poking and prodding brought on a new bout of pain, and he was away from work until August 7th. 

Sunday, June 30, 2024

The Saga of the Mysterious Abdominal Pain Continues (Part 2 - June 2024)

If you missed Part 1 of this Saga, you can go back and read it HERE

I took off the morning of June 3 so I could take Hubby to his Nephrology consult, and what an experience that was! Dr. L is this tiny little Asian woman, maybe in her 60s, probably 100lbs soaking wet. She listened to his symptoms and reviewed previous labs he completed. Before the appointment, Hubby submitted a urine sample and the results were the same (Proteinuria). His blood pressure is responding to the Amlodipine (prescribed last month by Dr. K); he’s now in the high 130s/90s range. She asked about his medical history, what meds he takes, normal stuff. Any time we’d say something she didn’t like, she’d crinkle up her face and then lightly lecture us (like, you don’t go for walks at all?!? Or Oh, you shouldn’t eat ham sandwiches, they’re full of salt and nitrates! Or You should never eat fast food ever again and switch to a vegan diet!!! Okay that last one was an over-exaggeration). Like, yeah, we get it. We know that we don’t eat healthily. But it didn’t feel like there was any empathy or caring to her admonishments; it came across more like nagging. She also seemed a bit rude and disdainful about the fact that his current General Practitioner was a virtual doctor; she called Dr. K a “Doc in a Box” in a dismissive little way (kind of a she’s not a real doctor because she can’t touch you remark). Neither of us were huge fans of her bedside manner (spoiler alert, she’s growing on us).

One interesting thing that she discovered, though… She went back and looked at all of the labs from when he was in the hospital for his appendix last year, and he had Proteinuria then! None of the doctors ever said anything! (My guess is that, since it wasn’t appendix-specific, they didn’t care at the time). So, he’s actually had this problem for much longer than just the past month or two… we only discovered it because of an unrelated pain issue. 

At the end of the visit, she put in orders for 13 different blood tests, plus a 24-hour urine collection, and recommended a possible change to his Blood Pressure meds (one that would have more benefits for his kidneys than what he’s currently taking). We picked up the Pee Jug and took it home with us – the plan is to start immediately, finish on Wednesday before his Colonoscopy Consult, then take the jug over to the lab afterward. 

Stress and worry came to a head later when we got home… Hubby started his 24-hour "pee clock" at 10:44am, which meant that his last pee would be around 10:44am the next day. Unfortunately, his GI (coloscopy) consult was at 11, and we had to leave the house by 10:15 to get there. I kept joking that he could pee before we left at 10:15, and bring it with us in case he had to pee again before 10:44, but he was adamant that he wasn’t going to leave the house until 10:44. No matter how I tried to explain that this was a stupid idea (in nicer terms, of course), he kept pushing back (he’s an obstinate SOB), accusing me of demanding he “pee on command” (which I wasn’t) and that he can’t do that (doesn’t matter, since I wasn’t asking him to). Finally, I just threw up my hands and said fuck it and let him stew. We put it behind us by dinner time, with him apologizing for taking his stress out on me. 

The next day, we packed up his jug nice and secure, with some ice packs to keep it cold, and headed over to his GI consult. This ARNP had such a great attitude, with a good sense of humor, even going as far as to recommend that we watch the episode of Good Mythical Morning when Rhett & Link got their Bro-lonoscopies. 


We got him scheduled for his coloscopy on June 20th and got a personalized hand-out of what pills and drinks he’ll need, when to drink and take the pills, and what to expect during the prep and actual procedure (but that’s a post for another day). Then, back across town to the lab to drop off the pee, though it was way too busy to stick around for bloodwork (it was past lunch time and we were both hangry). We picked up food from Sonic and headed home. We’ll pop over to the lab in a few days to do the rest of what is needed. 

On Wednesday (June 5th), we met again with Dr. K and filled her in on the events of the past week or so. She found it interesting that he’d been dealing with Proteinuria since last year, and no one told him about it. She was okay with Dr. L taking the lead on his care, since it was seeming like there was a lot of kidney-related care that was needed, but asked that we continue to keep her in the loop with lab results and scan results. When we complained to Dr. K about Dr. L’s bedside manner she suggested that we ask for a new doctor within the practice (later, after discussing it again, he decided we should give Dr. L another chance, just in case this was a one-off bad day or something). 

After another night of insomnia (oh, that better not be coming back!), we got labs done again, and the high protein (1200mg/day) was still there, as well as a positive hit for random antibodies (nothing specific). His kidney function has dropped from 75% in 2023 to 66% in 2024. Dr. L reminded us to watch his diet (low sodium, no fast food, vegetarian options, no prepackaged food) which may improve his blood pressure and help with weight loss – which in turn may decrease the Proteinuria levels. 

On Friday (June 7) he woke up with that mysterious Left Lower Quadrant (LLQ) pain again, really bad pain this time. And hasn’t returned to work since. He put in for a second leave of absence, but Dr. K fears it will be denied, because there’s no medical proof that there’s anything wrong with him. At a follow up appointment a few weeks later, she said again that she was worried about it being denied (and she didn’t want him to lose his job because of this pain). The next Tuesday, he had a CT Urogram, which was a very easy test, and came back clean… No issues with the kidneys or bladder. Interestingly, they did see something on his L5 vertebrae, like an old stress fracture, but that has nothing to do with the current issues. 

On Thursday, June 20th, he had his colonoscopy, but wow… that was such an adventure in what not to do that I have a stand-alone post about that! 

We got lucky and scored an appointment for his Urology Consult the following week, and this doctor was a very direct, to the point, kind of man. He listened, but didn’t waste time, with small talk or unrelated questions. He palpitated the abdomen, fondled the goods (skipped the one-finger howdy, since his butthole was sore after his colonoscopy). He didn’t see or feel anything questionable, so he suggested a Cystectomy, where they use a small tube to go up the peeper and into the bladder, to see what’s happening up there. That’s set up for August. On the way home, I suggested that he take a few Tylenol before the procedure, similar to how women are told to take meds before an IUD insertion, just to be on the safe side (A bit of pressure is doctor-speak for This shit’s gonna hurt). Then, because I didn’t want him to be surprised on the day of the event,  I explained to him that Lidocaine would be delivered through a needle (spoiler alert… I was wrong abut the delivery method) into his peeper. He was freaked out, as any man would be! I patiently explained that Lidocaine is what the Dermatologist uses when they shave off my moles, and how it works instantaneously. The first shot would suck, but then he wouldn’t feel the other ones... I’m pretty sure he stopped listening at “they’re gonna put sharp needles on my dick head,” though. 

We followed up the next day with Dr. K again, and she was (rightly) frustrated that he still hadn’t gone back to work yet, and admonished him for thinking that he shouldn’t go to work when he has pain, like none of us wake up pain-free, we just deal with it. They set a date to return to work on July 8th. She recommended that we continue with Dr. L and find a local General Practitioner so that we have a hand-on doctor take a swing at this. Besides that, I asked her if she thought that this LLQ pain could be something as stupidly simple as muscle strain, or a pinched nerve, and she said it was definitely possible. Those types of things don’t show up on x-rays or CT scans. She agreed with me that he should be up and moving around – I’ve been saying this to him for weeks, but maybe having her say it would kick his ass into gear a little bit (spoiler alert… it didn’t). I mean… It’s gotta be a muscle thing, right? I am wondering now if he picked up something wrong, or bent over wrong? Did he pull something the last time we had sex? Or a small muscle sprain or tear? What else could it possibly be? I’m so frustrated! 

So at this point, we have a little bit of breathing room. We have additional labs and a 24-hour urine to do, but I don’t think there’s anything to do until July 8th, when he goes back to work, and then nothing until August. I’m hopeful that – once I get him up and moving again – that stretching and walking will help him some, especially if I can get him limbered up before he goes back to work. 

Friday, June 28, 2024

Pooper View - A Wife's Experience with her Husband's First Colonoscopy

I want to preface this by saying that I love my husband very much,
and the mean things I say about him in this post are meant in jest...
He simply tested some nerves!   

If you read my last post, you saw that Hubby has been dealing with some mysterious abdominal pain, and we've seen all sorts of doctors for this issue. One of the things that his primary doc suggested was that he go ahead and do a Colonoscopy, now that he's 50 (though, the age to start that has dropped to 45, so yay, I should be having one soon as well). It didn't have anything to do with his pain issues (or newly discovered kidney issues), but just a general preventative test. 

The weekend before his Prep days, I did a quick google search of what he couldn't and couldn't eat/drink, and many websites only said to avoid red and purple foods or beverages. So I picked up some Blue Powerade, Orange Jell-O, some vanilla pudding... all things that his actual Prep Packet said that we should also avoid (nothing orange or blue). I also picked up Apple Juice, White Grape Juice, and the Mag Citrate drinks. I put all the drinks (plus some organic Lemonade from Trader Joe's) in the fridge to chill before the Prep began. 

On Wednesday morning (Prep Day), I set up the bathroom with a little TV tray that had air freshener, washcloths, baby wipes, butt cream, a USB cord for his phone, a space heater (the room gets cold), and an extra bottle of water. He set reminders on his phone for when he was supposed to start drinking his first Mag Citrate, and I put the timeline on the whiteboard on the fridge. He was supposed to drink a Mag Citrate at noon, take two Dulcolax at 2pm, then a second Mag at 6pm, in addition to 64oz of plain water. Hubby (to my irritation) doesn't ever drink a lot of any type of liquid, so there was no way he was going to be able to drink a half-gallon of water in a day! 

He opened the first Mag at noon, and immediately made a face. It was super-salty and tasted terrible and he wasn't able to drink a lot of it quickly. While he sipped, I made ramen for lunch (hey, I'm not on a liquid diet!) I think it took him about an hour to make it through the first bottle of Mag, and it was sitting loudly in his stomach. He followed it with the Dulcolax at 2pm, and it was fine... until about 3pm or so...

And the pooping began. 


At first, there wasn't too much of an issue; he went in, he pooped, he came back out, he went back in. But around 5pm, he started getting really nauseated and there was no way he would be able to start the next bottle at 6pm. He called the nurse-on-call and they said that it was totally normal; he should try to relax, breathe, blah blah blah. 

He started the second bottle of Mag at 7pm (about an hour behind schedule), but he was having a terrible time, only able to take tiny sips. I suggested that he mix it with any of the juices (he poo-pooed, heh, that idea) instead choosing to dilute it 4-to-1 with room temperature tap water. Sigh... all this did was stretch out how much water/mix he had to drink! Oh, and he decided to just camp out in the bathroom to drink this, instead of sitting on the couch during the non-poopage times. 

Throughout the day, I just randomly munched on snax, spending time working on the blog. I had a bagel with melted cheese for dinner around 9pm then just zoned out to YouTube videos and Reddit. Once in a while, he'd come out of his cave to check in with me and tell me to go to bed, but I told him that I was staying up however long it took him to finish the Mag, to make sure he was okay and didn't need any help. Around midnight, he was nauseated again, having a hard time drinking so much liquid (well, duh, you're drinking 4x as much liquid as you really need!). I had to put on my Nagging Wife hat and try to force him to finish the second Mag. 

He still had about a quarter-bottle of Mag left to drink at 2:15am, and he attempted to chug it which, unfortunately, ended up with vomiting (while pooping, bless his heart). Thankfully, most of the Mag had done what needed to be done, so we called it a night around 2:45am and went to bed (and damn, that bed felt so good! When I woke up on Thursday, I don't think I'd moved at all during the night). 

On Thursday morning, he was feeing a little better, and started his third bottle of Mag at 9am. I again suggested he mix it with any of the juices, and he again turned his nose up at the idea, choosing to go with plain, room temp water (okay buddy, sucks for you). 

I left at 10am for a previously scheduled hair appointment across town, picked up Chick-fil-A and a drink on the way home for lunch. While I was gone, he got all the Mag down, but a little came back up at the very end. He said that his output was the color and consistency that it should be, so I had to hope that he would be okay for the actual procedure (if the exit's not clean, they'll make you do it all again). 

Later in the afternoon, we got to the facility, checked him in, and only had to wait about 10 minutes before they called him back for his procedure. I wasn't allowed to go back with him, so I went on a field trip to find the hospital cafeteria. I didn't need any food, so of course, I ordered a plate of Bacon Cheese Fries! They weren't the best, but certainly not the worst I've ever had. The fries were hot and fresh, with tons of cheese sauce, and hand-chopped bacon (not 'bits') for about five bucks. 


I found a nice table outside in the shade, and ended up only eating about half of the fries (again, I didn't need fries...this was self-soothing with food). I walked back to the facility and sat in the main lobby near the elevators (quieter than the lobby where we checked in). I was there for about 45 minutes, and then the office called me to tell me that Hubby was coming around and that I should meet them at the front door, and they'd bring him down for me. 

On the drive home, we reviewed the After-Visit summary - they removed three polyps (one of which was a Tubular Adenoma, could become cancerous, but not cancerous right now), with no other issues found (including any reason for his mysterious LLQ pain). 

At home, he relaxed on the nice, soft couch, though he didn't feel a lot of pain or violation from the actual procedure. He had a little blood in his poo later (we were told that was to be expected), and over the following few days he had a painful butthole. All in all, this was an uneventful successful procedure, that he gets to do again in 3 years. 


Maybe then he'll listen to my suggestions more, do it my way, and have an easier Prep! 



Friday, May 31, 2024

The Saga of the Mysterious Abdominal Pain (Part 1)

Last year, if you recall, Hubby had an appendectomy. They did it laparoscopically, going in from three places: his belly button, his FUPA crease under his belly button, and the left side of his lower abdomen (the appendix is located on the right side of the body). Surgeon told us later that this was an easier way to do it, instead of cutting him open all the way. 

Fast forward to mid-April (after we got back from vacation, actually), when he told me that he’d been having some abdominal pain on the left side for the past few days. He wondered if it was related to his surgery. By April 18, he was in increasing pain, kind of like waves, where I’d see him tense up his whole body to deal with the pain. He’s never been a “go to the doctor” kind of guy, but I was able to talk him in to seeing a virtual doctor, via Doctor on Demand, which is covered by his health insurance. We spoke to Dr. K and after hearing all of his symptoms, she suggested that he might have Diverticulitis – this is when there are little pockets in your intestine that become inflamed or irritated. (Diverticulosis is when you have them, Diverticula are the names for the pocket, and Diverticulitis is when they’re angry). She suggested that he eat a low-fiber, easy-to-digest diet (to give the intestines a chance to heal), and follow up in a week. 

At the April 24th follow-up, he reported that the pain levels were about the same, about a 4-5 on a scale of 10 (seriously?) Because of this, Dr. K suggested that he get some lab work done, as well as a urinalysis (UA), continue the diet, and follow up again in another week. We got the lab work and UA done at a local Walgreens, and the results showed red blood cells and high protein levels (3+) I his urine. Dr. K called us when she got the results and posited that a kidney stone might be the culprit (even though kidney stones usually cause pain in the back). She referred him for a kidney ultrasound, as well as a colonoscopy (because he’s due for his first one, not because of the pain). She also wrote him a prescription for blood pressure meds, because his blood pressure was way too high, hitting Hypertension 1 or 2 levels. The plan was to have him pick up his new meds after work when he went back – he’d been taking a leave of absence at this point, because of the pain and all the doctor stuff. 


He was set to return to work on May 2nd, but he couldn’t sleep overnight (May 1st into May 2nd)… Nothing unusual, this has happened in the past; he would just take an extra day off and get back to normal the next night. Not this time! He was suffering some serious insomnia that I’ve never seen before. We’d watch TV in bed for two hours or so (up until about 10pm, normal bedtime for us), and he’d fall asleep until midnight and then just… be awake the rest of the night until the alarm went off at 6:30am. This went on for a few days (with him missing more and more days of work), with him getting more and more frustrated – which, in turn, made the insomnia worse. We tried Unisom. We tried Tylenol PM. Finally, I had to be “The Bitch” and I took away his soda after 2pm (I mean, come on… he was complaining about his insomnia while drinking Mtn Dew in bed…). I had to gather all of my Inner Peace Hippie language and tell him that things would work out, would be okay, it’s nothing to worry about, blah blah blah (basically “talk him down” and get him out of his head). I made the suggestion that, when the insomnia happens, he should get out of bed, go sit on the couch and read until he felt sleepy again. When he felt sleepy, just let it happen, and just sleep on the couch. This did work, and for a few days, I’d go wake him up to see if he was going to go to work (never did), then lead him back to bed where he’d sleep again until 9:30 or so. Every morning, he was like a zombie. 

During this time of insomnia, on May 4th, his Ultrasound was negative for anything. No stones found. No kidney abnormalities found. There is a possibility that a stone was there and it had passed painlessly. Dr. K suggested that he do a second UA at the end of the month before the next virtual appointment. The following day, I finally had a chance to pick up his blood pressure meds (yes, almost 2 weeks after they were prescribed), and I also picked up some Magnesium Glycinate and Melatonin – I was gonna get that man to stay asleep all night, no matter what it took. No caffeine after 2pm. No candy in bed. No cake or ice cream or brownies. Lots of water. Two Mag and two Melatonin at bedtime. And holy shit, did it WORK! He slept like a freakin’ rock! He was finally able to sleep all through the night, and on May 24th, he returned to work (thank god!)

He had a follow up UA on May 28th, and when the results came back, Dr. K called us to tell us that there was still protein in the urine; she believes that the kidneys are fine, but there’s just a “leak” somewhere. Kidneys aren’t supposed to let the good stuff, like protein, go through; only waste. She recommended a CT Scan of the kidneys, as well as referring him to a Urologist (for the urinary anatomy) and a Nephrologist (for the kidneys). She reiterated that there’s no cause for alarm, but with the kidneys not working right, the cause needed to be found. All referrals were sent as Urgent so that he would be seen quickly. 

Even though I knew I shouldn’t, I (of course) hit up Google to figure out what might be happening. Many results said it was Proteinuria, a sign of Kidney Damage. Then it got a little scarier… It could be an indication of Chronic Kidney Disease, which eventually leads to Kidney Failure which leads to Kidney Transplant or death. But, let’s not think about that… Possible treatment includes easy (yet hard) things like changing diet, weight loss, or (in some cases) dialysis. 

My brain is trying to pin the high blood pressure as the culprit, but at the same time… my brain is running away, indulging in horrid What If scenarios. Months and months of health issues. Sick husband who can’t work. How to pay bills. Having to be the only one who can do anything. And then Wednesday, as I’m doing dishes, out of nowhere, my brain decided to conjure up the idea of him dying, and envisioning how to tell my child that her father was dead, how to tell my mom, notifying not-as-close family and friends, and everything that comes with that. I spiraled deeper into this treacherous fantasy as I scrubbed pots and pans… Does he have life insurance? Would I be able to keep the house? What about all the places we said we’d go some day that he’ll never get to go to? God, it was terrible! I saw the next 50 years of my life, dreams we had, but without him in it… And then… then… My brain said, if he’s gone, why should I even stay in this town? How could I possibly live in this house, that we built our family in for the past 20 years? His memory is in every single square inch of this house. How could I suffer with that for the next 50 years? But then… I could I not stay? Leaving this house would be admitting that he finally was gone, out of my life, and that I was ready to move on without him. 

Have you ever tried to do something while trying not to cry at the same time? Lord, it was a shitty day… Every time I thought I was okay, another thought would cross my mind (He’ll never see the Pacific Ocean or He’ll never get to visit Japan) and I’d have to bite the inside of my cheek to keep my shit together. I was fine in bed while we watched TV, but of course, Lights Out Bedtime Brain does some seriously mean things, and once I was sure he was asleep, I had to go into the bathroom and sob (like ugly, mouth open sob) into a towel, just to get it all out. Like, how do I survive without this man? He is my world. There is no place in my existence that he has not touched. 

This morning (May 30th), I woke up and for a blissful moment there were no problems. He was sleeping. I was sleepy. Everyone’s bodies worked perfectly. Then I stretched and my muscles hurt (as they always do), and it was like snapping back into my body… There is an Ongoing Situation hanging over us, like a grey cloud. It’s not a black cloud, I tell myself today. Kidneys are fine. They’re just a leak. It could be something that can be fixed with a pill or a diet. That’s what I’m tying my hat to today. 

Everything is okay until I hear otherwise. 

Thursday, May 2, 2024

Oh Lord, it's Happening Again - Meet Steve!

In thinking about New Year, New Me bullshit at the beginning of the year, I had made a few bullet points in my brain, kind of a "Take Care of Myself" to-do list for 2023. Included on that list was replacing my IUD (done!), getting Lasik (just had my consultation!), getting a filling (ugh), and finally seeing a dermatologist to remove the new bump that has resurfaced on my chest.  

Well... Apparently, that bump (that's been slowly creeping back since 2017) has decided to line jump everyone else... He's back and he's angry


Back in 2013, when I went to the dermatologist to get a few other moles removed, I pointed out this bump, and they told me it was perfectly normal. Three years after that, it got funky and had to be drained. The bump totally went away and my chest was nice and smooth. I think the first time I have photo proof of the bump being visible again was in 2018, and even then he was tiny, like a mini M&M, and didn't hurt at all. Fast forward to now, and he feels about the size of a Peanut M&M, just hanging out under my skin. No pain or anything, but annoying and ugly and so I wanted him gone. 

I guess he didn't like the threat of eviction, so he began to cyst up. I first noticed a slight pain, like tenderness, in the area around March 17. I wrote it off as post-massage pain (my massage therapist really hurts me sometimes!) and ignored it. But the pain was still there a day or so later, which is unusual. By Sunday, I was sure that the bump was becoming Cysty Spacek, so I started slathering it with Neosporin, hoping to get ahead of it and keep it from coming to a head. 

Shiny Steve, under a blanket of Neosporin
On Monday, March 20, I debated getting an appointment with my general practitioner, but remembered that my employer now has a dedicated health center (woo hoo!), and I was able to score an appointment for the very next day. 

Getting a little bigger... 
On Monday, I headed over to the doctor's office. The ARNP poked and prodded it a bit, agreed with everything I'd told her (I've done all this before, sweetie, I know more than you), and set me up with a round of antibiotics. She also referred me to a local dermatology office, in case I could get in before The Poppening began (but I don't have high hopes). I came home, slathered more Neosporin on it, covered it with a huge Band-Aid, and resigned myself to having to deal with this again. 

Yep, it's getting a pointy part to it, the Poppening will happen soon
Hello, Steve's Head, can't wait to clean you out
He's mean now (Thursday, March 30, for reference)
On Wednesday, it was slightly bigger, as expected. The Band-Aids were more irritating than helpful, so I only covered the bump when I was out and about. On Saturday, I did parkrun, then went grocery shopping, where I must have picked up some cooties, because on Sunday, I started feeling miserable!!! Headache morphing into a migraine, and a fever of 101.5º! I took a long nap, but it didn't help much. I was miserable all day, and I ended up texting my boss that I would be working from home on Monday. 

I beat back the fever and fought the migraine all day, but I was unable to eat anything, which was a new and shitty development. By Tuesday, I was feeling really bad, so I stayed home again, but I was getting overly concerned, so I set up a telehealth with Dr. F at the health center... I wondered if I was having a reaction to the original antibiotic, or if the cyst was leaking and making me sick? She thought I might have a slight case of the flu (remember the flu?) She changed my antibiotic to a different variety, just in case. I ended up eating a package of Honey Stinger gummies for dinner, and took both a Unisom and a Tylenol PM at bedtime... I slept the sleep of the dead.

On Wednesday, I continued to work from home, and I was actually feeling slightly better. The migraine had been replaced by a less terrible, "regular" headache. I was able to eat half a bowl of Lucky Charms. I had something food-adjacent for lunch, and made actual food for dinner (the first "real food" since Saturday, really). My stomach seemed happy to receive it!

On Thursday (March 30th), I assumed all was back to normal. I woke up feeling normal. I took Hubby to work like normal. I hopped in the shower like normal... But by the time I got shampoo in my hair, I knew I was fucked. I was getting dizzy, even though the shower was tepid - not my typical Bathtub of Satan Hot. Shaving my legs was difficult, and I whipped through it as quickly as possible, then got the conditioner out even quicker, and then... 

Well, new Life Accomplishment unlocked, at age 45. I puked in the shower. Luckily it was all water, but wow. I never want to vomit from a vertical position ever again. It was like my body had no idea how to puke vertically. There wasn't any force to the expulsion, it was just such a weird, uncomfortably uncomfortable experience. I got out and rested on the toilet, then did my hair, wrapped myself up, and laid in bed for 20 minutes. I emailed my boss to let her know I was staying home again, then texted Hubby the same. I called the Dermatologist again (they still hadn't called to schedule me for a visit, despite two referrals and me leaving a voicemail with them yesterday), and fortuitously, they had a cancellation, so I scored an appointment for the afternoon at 2:30. Unfortunately, that meant I had to cancel my standing massage appointment, but this was much more important. I picked Hubby up from work around 1:30 and headed over to the Dermatologist.

This was definitely a fancy Dermatologist's office. Everyone was pretty and perfect... {eyeroll} They got me in and told me that they could "express the infection" today, but I'd have to come back to have the sac removed. I was okay with that, so they had me lay down, and injected me with Lidocaine. 

Will this fix it?
Now, on a normal day Lidocaine isn't that bad... some people say it hurts a bit, but I've never had an issue. This time though? It was like someone was sticking red-hot electrified needles through my skin. It was hellacious! I threw out four or five bellowing "FUCK!!!!!!"s before I even realized I was bellowing! I apologized to everyone in the room for my reaction, but then she stuck me again, and I bellowed some more! I expected her to let it sit for a few minutes to really kick in, but she was squeezing like a teen on prom night as soon as she put the needle down. It only took a few minutes (sorry, they threw the ick away, so no photos for you, you sicko), then I was bandaged up and sent on my way with an appointment to come back once I was fully healed, so they could get the sac out, and an additional appointment for a full-body mole check (but that's for a different post). I was in-and-out in under 30 minutes! Hubby thought we'd be there for hours, having actual surgery, but nah, not this time. At home, I took some Aleve to get ahead of the pain and had a candy bar for a snack... so far my body is happy with that (kinda...). I slept great, and was starving when I woke up the next day, so I think I'm definitely on the mend. 

On Saturday, I did parkrun, got a haircut, made a grocery run, and picked up Chick-fil-A for lunch. I was still tired and somewhat weak from the weirdest Sick Week I've experienced in forever. I've been keeping Steve covered since Thursday, and it feels like it's getting full again. It hurts, just like it did last week. When I took my bandage off to look at it, I could tell, yeah... it's happening again. Should I go back to the derm? Is this some bullshit I have to deal with over and over? I just spent $50 to have this drained, only to have it come back in a few days! Why did I bother! 

By Sunday, it was fuller, and more painful; and maybe I was imagining it, but it felt more painful than last week. On Monday (we're up to April 3rd, if you're keeping track), I felt okay enough to go to work, but it hurt a lot. By Tuesday, I was thinking that I needed to go back to the derm, as it was for sure more painful than before I drained it. No matter how I stand, or sit, or lie down, bra or no bra, the weight of my breasts pull on my chest and cause the cyst to hurt. But even worse is that my chest skin is MAD from all the Band-Aid wearing. I had to actually take it off while I was at work to give it a break. 

When I went to bed, I decided to try a warm compress (that's supposed to help, right?) First I tried my warm-up eye mask that I have for headaches; that was nice for like 10 minutes but then the heat dissipated. So I broke out my Old Lady Heating Pad, and I actually fell asleep on my back with the pad on my chest, with my hand on top to hold it there. It was a fitful sleep, but I was able to stay this way all night long. 

{It's gonna start getting gross from here, folks... Proceed if you can handle it}

The next morning, I woke up and was happy to see that the pad had stayed in place all night. When I pulled it off my chest, though... it was stuck to my body. I cracked open one eyeball and saw that there was some discoloration on the cover of the pad, and damn, it was like Christmas Morning! My cyst had finally come to a head! I was still half-asleep, so my first thought was, okay, if it's leaking, I can put some Neosporin on it but, guys, we were WAY past that stage. Once I got vertical, a gush of blood started drooling its way down my skin... It looked like I'd been shot in the chest. I peed while I held a wad of toilet paper to the open hole, then checked it out in the mirror. 

Okay, so I wasn't expecting Squeeze Time at 8am, but it's Squeeze Time whether I want it to be or not. It hurt! Both because there's a disgusting cyst in there, but also leftover pain from Squeeze Time last week. Thankfully (unfortunately? Ewww...) most of the pus-sy stuff was expelled at the Dermatologist's office (you know, that vanilla pudding-type gunk); I had to deal with a lot of dark maroon red blood, and some cyst particles. After about 10 squeezes, the much more... chunky... stuff started showing up. I tried to pull it out with tweezers, but no luck. I was able to pull a little more out with TP-wrapped fingers. 

But then... oh then... a big hunk emerged, and just enough pressure... and this absolute mass of bloody, chunky funk launched itself across the vanity and squelched into the mirror. It was so chunky and bloody that it began to drool down the mirror like a murder scene. I am who I am, and I pulled out some of the chunks so I could take a picture of them, then continued to squeeze until my chest stopped hemorrhaging. Then I cleaned up the murder scene that was the vanity and mirror. Then I cleaned up ME, who was looking like Carrie White at this point. Finally, I cleaned up the hole, got as much of the leaking taken care of as possible, then put on a big bandage to catch additional leakage. 

Top Row: Pieces I rescued from the mirror (No idea why there's hair on them)
Middle Row: Leftover chunks that came out a few days later
Bottom Row: After popping vs what it looked like 2 days earlier
I climbed back in bed for a bit for my chest skin and muscles to recover, and worked from home the rest of the day. By the end of the day, the swelling had gone down, and the pain receded by about 75%. I changed bandages once, and it was as disgusting as expected. Fresh bandages and Neosporin went on before bed. I was hopeful that I wouldn't have to do this again; it's not the squeezing that hurts, but the filling up part (anyone who's had a huge pimple can totally understand).

For the next few days, it kept leaking but not chunking, and not filling up any more. I used some of the bigger bandages that the Dermatologist gave me, because I could double them up for more coverage. My skin absolutely hated the adhesive, but too bad! By late Friday, I swapped over to "normal size" Nexcare Sensitive bandages. I think at this point, I've turned a corner to recovery. so maybe I can finally get back into the swing of things!!! I've put off gym and running for weeks because of this, and I'm tired of it! By Sunday, I had just the tiniest bit of seepage. Over the next few weeks, the leaking stopped and I eventually could go bandage-free (oh thank God!). I was finally able to get back to the gym by the end of April. 

By mid-May, the cyst was completely deflated and empty, and I was back to having a hard, Peanut M&M-sized bump under my chest, with a healing hole next to it. 

You can see that Steve set up shop NEXT TO the bump
I was beginning to fret about my upcoming procedure to remove the bump (who at some point I renamed to Steve). I wasn't looking forward to the pain from the Lidocaine. I didn't know if I was going to have to pull packing gauze out afterward, and if so, for how long. I didn't know how much pain I'd be in afterward. I was just... in a mood when I woke up on May 11. I had a small bagel for lunch (under duress... I wasn't hungry, but I knew that Hubby would force me to eat if I didn't). I got to the office, and got called back after a few minutes. The Lidocaine was much less painful this time (not shooting into inflamed tissue, I suppose), and I was numb very quickly. Dr. A came in and sliced Steve out of me and had me sewed back up in minutes! They used electrocautery for hemostasis, whatever that means. I got 3 deep stitches, and one surface stitch... And I learned that "one stitch" doesn't mean that you have one line of thread, because I had about 8-10 lines of thread... it looks like a caterpillar on my chest! 

The stitches the day after removal
They bandaged me up and let me have a look at Steve, and yes, I took photos this time. He was bigger than I expected, bigger than the tip of my index finger. I have to keep my chest dry until tomorrow, and then clean it well and slather on some mupirocin for the next two weeks. I'll come back right around Memorial Day to have my stitches removed, and then a few weeks later, I'll return for a full body mole check. On the way home, we got ice cream and a big ol' soda for me at Sonic, and I plan on ordering pizza for dinner. Because I'm a grown ass adult who just had a gross cyst pulled out of her chest! 

The pressure gauze/bandage right after stitches were done
Everybody... Say hi to Steve!
Goodbye, Steve, I won't miss ya!
On May 25th, I had my stitches removed, and I was left with a keloid scar that looks like a funky caterpillar. For about a week, I was just putting on some Jergen's Manuka Honey body lotion that I had lying around; I ended up buying some scar gel that was supposed to be better than Mederma, but it hasn't done shit. And I can't return it to Amazon, so I'm stuck with it. I went back and ordered some Silicone Scar Sheets, which I've been wearing non-stop, and as of July 11, I think I'm seeing some improvement? It's a thick nasty scar, so it's probably going to take a lot of time to break it down, I think. (ETA: I don't remember exactly when, but I stopped wearing the sheets... it seemed like it was making the scar hard, so I stopped for a week. The scar got softer. So I put the sheet back on, and it felt hard again. So screw it... my skin's gonna get whatever the scar ends up doing...)

The last day with stitches
Finally, the caterpillar is gone!
From July until now, everything has been fine. I touch my scar a lot, like a woobie. Steve had been there for a decade, and now he's gone... Maybe I'll call my scar Jefferson, since he replaced Steve. (Yes, that is a "Married... with Children" reference. One Cool Point to you if you got it!)

So, here we are now, a full year later, May 2024, with some After Shots, as well as some side-by-side shots to show how well I've healed. Do I like the scar? Nope, not in the slightest. But it's part of me and it's part of my story. Life would be boring story if we only talked about the good parts!

Future Lazy here... I had my annual body check last week (June 13), and the derm went ahead and injected a steroid shot into the remaining scar tissue. So far, I don't think anything has changed, but maybe it takes some time. 

Photo taken May 1, 2024

Top Row: March 30, 2023 and May 4, 2023
Bottom Row: May 13, 2023 and May 1, 2024